Sick days

Sick days always scare me with Zion...my mind rushes to the worst possible things. I always think of those little ones who were completely healthy and then one day it just all went downhill. What if that's today? What if he can't get over this one? What if this is our last day? I hate it. I hate feeling like this. I hate SMA and what it does to our babies. A normal sickness hits their little bodies ten times harder. He spent most of today hooked up to his pulse oximeter. And it beeped....and beeped....and beeped....his heartrate was so high and his oxygen got so low. My heart stopped. We gave him a breathing treatment and his heartrate went higher. Once we were done we made him a pallet on the couch and he laid down. He finally fell asleep and his heartrate went back into normal range and his oxygen was steady at 96/97. Days like today make me cherish every moment I have with him. You never know what's going to strike and how hard it's going to be. He is the strongest little boy I know <3 We will beat SMA!

Family Day

These past couple of days have been pretty tough on me so yesterday we decided to just have a family day. :) I was perfect. Even though we went to the beach and it was closed, we quickly decided on going to a different lake. We spent about an hour just sitting on the edge of the lake letting the Zs play in the water. It was a day I definitely needed and had been needing for some time.

We came home and right away Zion asked to get in his wheelchair. :) That almost never happens! BUT yesterday morning we came up with the idea of getting one of his bigger bouncy balls and cutting a hole in it and putting it on his joystick. He is obsessed with bouncy balls so this was a great idea! :) He is now LOVING his power chair!

He can get outside by himself!

He is so incredibly smart and can get ANYWHERE when he's in his powerchair! It looks big and bulky (well, it IS big and bulky :)), but somehow he can weave in and out of things like you would not believe! I am so proud of him and how determined he is! SMA will NOT limit what he can do, we just have to find a different way for him to do it :)